SICKLE CELL ASSOCIATION OF BC
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      • Preventative Measures for Sickle Cell
      • Before a Painful Episode >
        • Medical Research for Health Care Professionals >
          • New Theraputic Approaches for Sickle Cell Disease - slide presentation
      • During a Painful Sickle Cell Crisis
      • Emergency Room for the Sickle Cell Patient
      • After a Sickle Cell Crisis
      • Awareness of Sickle Cell Triggers
      • When No One Beleives You
    • Diet, Nutrition, & Home Remedies >
      • Unique Ways for Keeping Hydrated for the Sickle Cell Patient
      • Cold & Flu Season for the Sickle Cell Patient
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    • Personal Stories of Healing >
      • Storma's Story: We're Just Like You
      • Bev's Story
  • Lectures
    • Sickle Cell, Covid-19 & Cold/Flu Season: How to protect ourselves - Sept 2020
    • Voices: National Conversation without Boarders June 19/2020
    • The Hopes & Realities of Bone Marrow Transplantation as a Curative Therapy for Sickle Cell Disease - June 17, 2020
    • Sickle Cell: Are we doing enough? with Dr. Hatoon Ezzat. Nov 15, 2018
    • Bodywork for Sickle Cell Disease
    • 2019 Sickle Cell Information Session on New Therapies
    • Pain Management Lecture Sept 21, 2018
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Research and Resource Links:

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Disclaimer:
Information or materials on this website are not intended to treat or replace your doctor’s advice nor do we endorse any particular product, technique, or idea.
It is highly recommended that patients contact their haematologists or health care provider for adequate care and treatment.

Canadian Sickle Cell Associations:

Sickle Cell Association of Canada
http://www.sicklecelldisease.ca/

Sickle Cell Association of Alberta
http://www.sicklecellfoundationofalberta.org/index-2.html

Sickle Cell Association of Ontario

http://www.sicklecellontario.org/

Sickle Cell Awareness Group of Ontario
http://www.sicklecellanemia.ca/


Other Sickle Cell Associations:

Sickle Cell Disease Association of America

http://www.sicklecelldisease.org/

American Sickle Cell Anemia Association
http://www.ascaa.org/

Sickle Cell Disease Foundation of California
http://www.scdfc.org/


Other Sickle Cell Links:

NIH Clinical Trials Results via RSS
http://clinicaltrialsfeeds.org/clinical-trials/results/term=sickle+cell%20anemia

Sickle Cell Cure Foundation
http://sicklecellcurefoundation.org/

Foundation for Sickle Cell Disease Research
http://fscdr.org/

Providence Hematology
http://www.providencehematology.com/index.html

The University of British Columbia (UBC) - Centre for Blood Research
http://cbr.ubc.ca/

The BC Children’s Hospital Website
http://www.bcchildrens.ca/Services/Onc-HemBMT/blood-disorders/hemoglobinopathy.htm

Toronto Hospital for Sick Children – Pamphlets for many disorders, including sickle cell disease

www.aboutkidshealth.ca

St. Jude Children’s Research Hospital – Downloadable pamphlets for patients

http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7d8029ff89c1d110VgnVCM1000001e0215acRCRD

Sickle Cell Information Center – Extensive resources and information for parents, children, teachers and health care professionals

http://scinfo.org/

National Heart, Lung and Blood Institute (US Department of Health) – Overview of sickle cell disease and helpful tips to stay healthy, and links to other NHLBI sickle cell resources
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/

United Kingdom Sickle Cell Society – resources for adults and children
http://www.sicklecellsociety.org/websites/123reg/LinuxPackage22/si/ck/le/sicklecellsociety.org/public_html/

Sickle Cell Kids – an interactive website for kids with quizzes, videos and games
http://www.sicklecellkids.org/sicklecell_temp.html

American Society of Hematology
http://www.hematology.org/publications/50-years-in-hematology/4325.aspx

Dr. Andrew Weil, M.D.
http://search.drweil.com/search?site=DrWeil&client=DrWeil_search&proxystylesheet=DrWeil_search&output=xml_no_dtd&q=sickle+cell+disease&btn_search=SEARCH

WebMD

http://www.webmd.com/a-to-z-guides/sickle-cell-disease-nord

Health Link BC
http://www.healthlinkbc.ca/kb/content/nord/nord25.html


Sickle Cell Medical / Allopathic Treatment Links

National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/treatment.html

Harvard Medical School Teaching Hospital / Beth Israel Deaconess Medical Center
http://www.bidmc.org/YourHealth/Therapeutic-Centers/Search.aspx?term=sickle%20cell%20anemia
  • Treatments for Sickle Cell Disease
http://www.bidmc.org/YourHealth/Therapeutic-Centers/Search/searchresults/searchresult.aspx?ChunkID=20163

Mayo Clinic - Treatment
http://www.mayoclinic.com/health/sickle-cell-anemia/DS00324/DSECTION=treatments-and-drugs

University of Maryland Medical Center
http://umm.edu/health/medical/reports/articles/sickle-cell-disease

University of Illinois - Hospital and Health Sciences System
http://hospital.uillinois.edu/Patient_Care_Services/Sickle_Cell/Managing_Sickle_Cell.html

MedlinePlus
Bone Marrow Transplantation
http://www.nlm.nih.gov/medlineplus/bonemarrowtransplantation.html

Medscape
http://emedicine.medscape.com/article/205926-treatment

The Have a Heart for Sickle Cell Anemia Foundation
http://hhsca.org/about/

The New York times - Health Guide
http://www.nytimes.com/health/guides/disease/sickle-cell-anemia/


Sickle Cell Integrative / Holistic Treatment Links

US National Library of Medicine / National Institutes of Health
Anti-Sickling Effect of Dietary Thiocyanate in Prophylactic Control of Sickle Cell Anemia

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2571427/
http://www.ncbi.nlm.nih.gov/pubmed/3795284

Hartford Hospital
Natural Alternative Treatments
http://www.harthosp.org/healthlibrary/naturalalternativetreatments/default.aspx?chunkiid=38400

Mayo Clinic
Lifestyle and Home Remedies
http://www.mayoclinic.com/health/sickle-cell-anemia/DS00324/DSECTION=lifestyle-and-home-remedies

WebMD SC Treatment
Vitamins and Supplements for Sickle Cell Anemia
http://www.webmd.com/vitamins-supplements/condition-1873-Sickle+cell+anemia.aspx?diseaseid=1873&diseasename=Sickle+cell+anemia&source=0

Harvard Medical School Teaching Hospital / Beth Israel Deaconess Medical Center

Lifestyle Changes to Manage Sickle Cell Disease
http://www.bidmc.org/YourHealth/Therapeutic-Centers/Search/searchresults/searchresult.aspx?ChunkID=20420

Dr. Andrew Weil, M.D.
http://search.drweil.com/search?site=DrWeil&client=DrWeil_search&proxystylesheet=DrWeil_search&output=xml_no_dtd&q=sickle+cell+disease&btn_search=SEARCH

Earthing Techniques for Blood Cells and Pain Management:
http://www.psychologytoday.com/blog/heart-health/201005/earth-rx-amazing-solution-pain-and-stress
http://www.groundology.com/ca/scientific-research

http://www.holisticprimarycare.net/topics/topics-o-z/psyche-some-a-spirit/1198-earthing-restoring-health-from-the-ground-up
http://healthimpactnews.com/2013/grounding-helps-thin-dangerously-thick-blood-and-fights-inflammation-and-disease/
http://www.drbriffa.com/2013/05/03/new-study-on-earthing-finds-potential-benefits-for-the-circulation/
http://www.heartmdinstitute.com/health-topics/alternative-medicine/grounding-earthing/106-grounding-healthy-heart
http://www.hindawi.com/journals/jeph/2012/291541/
http://www.ncbi.nlm.nih.gov/pubmed/22757749


Pain Management Research:

Chronic Pain Self-Management Programs - Free 6 week workshops:
http://www.selfmanagementbc.ca/chronicpainprogram

St. Paul's Hospital Pain Programs
Outpatient - http://www.providencehealthcare.org/pain-outpatient-clinic
Inpatient - http://www.vch.ca/403/7676/?program_id=13515
http://www.vch.ca/403/7676/?program_id=13497

People in Pain Network
http://www.pipain.com/dr-pam-squire.html
  • Options for Developing a Personal Toolbox of Pain Solutions
http://www.painbc.ca/sites/default/files/pdf_files/ThePainToolbox%20with%20Hyperlinked%20Text%20FINAL%20Jan%2013,%202012.pdf
http://bcpaintoolkit.pipain.com/

Okanagan Interventional Pain Clinic
http://www.okpainclinic.ca/oipc/index.jsp?nav=services

Canadian Pain Coalition
http://www.canadianpaincoalition.ca/index.php/en/

Pain BC
http://www.painbc.ca/content/pain-clinics-and-services
http://www.painbc.ca/sites/default/files/images/McGowan_Pain_Summit_June_3_PSM_session_0.pdf
  • The Pain Toolbox: Tools for Self-management (Webinar)
http://www.painbc.ca/sessions/pain-toolbox-tools-self-management-webinar

The Pain Toolkit
http://www.paintoolkit.org/

Vancouver Coastal Health: Complex Pain Clinic - Vancouver General Hospital (VGH)
https://www.vch.ca/403/7676/?program_id=1062

The Vancouver Sun: Chronic Pain - Managing it, Living with it
http://www.vancouversun.com/Health/Empowered-Health/What+your+pain+never+stopped/8244723/story.html

Queen's University Department of Psychology: Pain Day Event - Chronic Pain Service Integration
http://www.queensu.ca/psychology/painlab/2013painday.html

Canadian Institute for the Relief of Pain and Disability
http://www.cirpd.org/painmanagement/chronicpain/pages/default.aspx

American Chronic Pain Association
http://theacpa.org/

Stanford School of Medicine: Chronic Pain Self-Management Program
http://patienteducation.stanford.edu/programs/cpsmp.html

EMSC National Resource Center - Pediatric Pain Management Toolbox
http://www.childrensnational.org/emsc/pubres/oldtoolboxpages/pediatricpain.aspx
http://www.childrensnational.org/EMSC/EducationTraining/VideoAudioPodcasts.aspx

My Therapy Online
http://mytherapyonline.ca/

The Pain Community
http://paincommunity.org/

Partners Against Pain - Caregivers
http://www.partnersagainstpain.com/pain-management/caregiver.aspx

Body in Mind - Research into the Role of the Brain and Mind in Chronic Pain
http://www.bodyinmind.org/about-bim/

The British Pain Society
http://www.britishpainsociety.org/book_understanding_pain.pdf

Spirituality and Chronic Pain: Finding Meaning in the Misery - Video / Online Webinar by Pain BC
Part 1 - http://www.youtube.com/watch?v=JJqTYwu60ec
Part 2 - http://www.youtube.com/watch?v=7WCVSawhb3A&feature=youtu.be


Other Medical Related Links


Canadian Blood Services and Stem Cell Registry
http://www.bloodservices.ca/
https://www.blood.ca/CentreApps/Internet/UW_V502_MainEngine.nsf/page/E_ubmdrPKG-intro?opendocument&CloseMenu&p=OMSplashJoin
  • Stem Cell Registry
www.onematch.ca

BC Inherited Bleeding and Red Cell Disorder Provincial Program
http://www.pbco.ca/index.php?option=com_content&task=section&id=4&Itemid=85

Thalassemia Foundation of Canada
http://www.thalassemia.ca/

Thalassaemia International Federation
http://www.thalassaemia.org.cy/

Thalassemia Association of India / Thalassemics India
http://www.thalassemicsindia.org/

Canadian Hemophilia Society
www.hemophilia.ca/

International Myeloma Foundation
www.myeloma.org

The Leukemia & Lymphoma Society of Canada
www.leukemia-lymphoma.org/

The Leukemia/Bone Marrow Transplant Program of BC

www.leukemiabmtprogram.org/

Lymphoma Foundation Canada
www.lymphoma.ca/

Myeloma Vancouver
www.myelomavancouver.ca/

Pulmonary Hypertension Association of Canada
http://www.phacanada.ca/en/about-us/
  • Gene Regulation Found to Play Role in Pulmonary Hypertension
http://www.phacanada.ca/index.php/en/search/?search_paths[]=&query=sickle+cell&x=0&y=0

Pulmonary Hypertension (PH) Association
PH and Sickle Cell Disease
http://www.phassociation.org/AssociatedDiseases/SickleCellDisease
http://www.phassociation.org/document.doc?id=960



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