Medical / Allopathic Research:
Disclaimer:
Information or materials on this website are not intended to treat or replace your doctor’s advice nor do we endorse any particular product, technique, or idea. It is highly recommended that patients contact their hematologists or health care provider for adequate care and treatment.
Here are some suggestions to investigate:
NIH Clinical Trials Results via RSS
http://clinicaltrialsfeeds.org/clinical-trials/results/term=sickle+cell%20anemia
Sickle Cell Information Center – Extensive resources and information for parents, children, teachers and health care professionals
http://scinfo.org/
Management of Acute Pain in Pediatric Patients with Sickle Cell Disease (Vaso-Occlusive Episodes) -
by New England Pediatric Sickle Cell Consortium
Management of Acute Chest Syndrome in Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD and Matthew Heeney, MD
Recommended Curriculum for Transition from Pediatric to Adult Medical Care for Adolescents with Sickle Cell Disease: Suggested Topics, Methods, and Efficacy Measurements -
by WISCH Transition Affi nity Group Members: Jane Hankins (chair), Sheila M Anderson, Michael Barnett,Fernando Barreda, Wondwessen Bekele, Suzanne Bell, Jeannie Byrd, Mary Campbell, Yvonne M Carroll, Maria Champigny, Miralda Charles, Alice Cohen, Audrey R Cole, Lori Crosby, Donna Dixon, Mark Goodwin, Oba Hollie, Ashley Housten, Alana Lopez, Kelley Mansker, Michael Matthews, Owita Mays, Brandi McClain, Amanda Norton, Wanda Payton, Jerlym Porter, Michael Regier, Sandra Sledge, Amy Sobota, Marcus Stevenson, Marsha Treadwell, Lauren Whiteman, Andrea Williams, Michelle Williams
Blood Transfusion for Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney,MD
Prevention and Treatment of Stroke for Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney, MD
Evaluation and Management of Fever in Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Elizabeth Mullen, MD, Sharon Space, MD, and Matthew Heeney, MD
Management of Priapism in Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, and Matthew Heeney, MD
Use of Hydroxyurea in Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, and Matthew Heeney, MD.
Blood Transfusion for Pediatric Patients with Sickle Cell Disease -
by KathleenRyan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney,MD.
Platelet-inhibiting drug does not significantly reduce pain crises in sickle cell disease
by Dr. Matthew M. Heeney, MD December 08, 2015
BCL11A-based gene therapy for sickle cell disease passes key preclinical test -
by Dr. David A. Williams, MD September 06, 2016
Gene editing study reveals possible 'Achilles heel' of sickle cell disease -
by Dr. Stuart Orkin, MD - September 16, 2016
Dialing up fetal hemoglobin dials down sickle cell disease -
by Dr. Stuart Orkin, MD October 13, 2011
National Heart, Lung and Blood Institute (US Department of Health) – Overview of sickle cell disease and helpful tips to stay healthy, and links to other NHLBI sickle cell resources
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/
The BC Children’s Hospital Website
http://www.bcchildrens.ca/Services/Onc-HemBMT/blood-disorders/hemoglobinopathy.htm
Toronto Hospital for Sick Children – Pamphlets for many disorders, including sickle cell disease
www.aboutkidshealth.ca
St. Jude Children’s Research Hospital – Downloadable pamphlets for patients
http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7d8029ff89c1d110VgnVCM1000001e0215acRCRD
BC Inherited Bleeding and Red Cell Disorder Provincial Program
http://www.pbco.ca/index.php?option=com_content&task=section&id=4&Itemid=85
United Kingdom Sickle Cell Society – resources for adults and children
http://www.sicklecellsociety.org/websites/123reg/LinuxPackage22/si/ck/le/sicklecellsociety.org/public_html/
National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/treatment.html
Harvard Medical School Teaching Hospital / Beth Israel Deaconess Medical Center
Treatments for Sickle Cell Disease
http://www.bidmc.org/YourHealth/Therapeutic-Centers/Search/searchresults/searchresult.aspx?ChunkID=20163
University of Maryland Medical Center
http://umm.edu/health/medical/reports/articles/sickle-cell-disease
University of Illinois - Hospital and Health Sciences System
http://hospital.uillinois.edu/Patient_Care_Services/Sickle_Cell/Managing_Sickle_Cell.html
Medscape
http://emedicine.medscape.com/article/205926-treatment
Mayo Clinic - Treatment
http://www.mayoclinic.com/health/sickle-cell-anemia/DS00324/DSECTION=treatments-and-drugs
The New York times - Health Guide
http://www.nytimes.com/health/guides/disease/sickle-cell-anemia/
Other Sickle Cell Links:
Sickle Cell Cure Foundation
http://sicklecellcurefoundation.org/
Foundation for Sickle Cell Disease Research
http://fscdr.org/
Providence Hematology
http://www.providencehematology.com/index.html
The University of British Columbia (UBC) - Centre for Blood Research
http://cbr.ubc.ca/
The BC Children’s Hospital Website
http://www.bcchildrens.ca/Services/Onc-HemBMT/blood-disorders/hemoglobinopathy.htm
Toronto Hospital for Sick Children – Pamphlets for many disorders, including sickle cell disease
www.aboutkidshealth.ca
St. Jude Children’s Research Hospital – Downloadable pamphlets for patients
http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7d8029ff89c1d110VgnVCM1000001e0215acRCRD
Sickle Cell Information Center – Extensive resources and information for parents, children, teachers and health care professionals
http://scinfo.org/
National Heart, Lung and Blood Institute (US Department of Health) – Overview of sickle cell disease and helpful tips to stay healthy, and links to other NHLBI sickle cell resources
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/
United Kingdom Sickle Cell Society – resources for adults and children
http://www.sicklecellsociety.org/websites/123reg/LinuxPackage22/si/ck/le/sicklecellsociety.org/public_html/
Sickle Cell Kids – an interactive website for kids with quizzes, videos and games
http://www.sicklecellkids.org/sicklecell_temp.html
American Society of Hematology
http://www.hematology.org/publications/50-years-in-hematology/4325.aspx
Dr. Andrew Weil, M.D.
http://search.drweil.com/search?site=DrWeil&client=DrWeil_search&proxystylesheet=DrWeil_search&output=xml_no_dtd&q=sickle+cell+disease&btn_search=SEARCH
WebMD
http://www.webmd.com/a-to-z-guides/sickle-cell-disease-nord
Health Link BC
http://www.healthlinkbc.ca/kb/content/nord/nord25.html
How Sickle Cell Protects Against Malaria:
Protection from Severe Malaria Explained
Naturally-Occurring Protection Against Severe Malaria Demonstrated
