Medical / Allopathic Research:

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Disclaimer:
Information or materials on this website are not intended to treat or replace your doctor’s advice nor do we endorse any particular product, technique, or idea. It is highly recommended that patients contact their hematologists or health care provider for adequate care and treatment.

Here are some suggestions to investigate:
Sickle Cell Cures
https://www.cbsnews.com/news/could-gene-therapy-cure-sickle-cell-anemia-60-minutes/
https://www.cbsnews.com/news/more-on-the-trial-aiming-to-cure-sickle-cell-60-minutes/
https://www.nhlbi.nih.gov/news/2019/sickle-cell-patients-recovery-after-gene-therapy-heightens-hopes-cure
https://www.nytimes.com/2019/01/27/health/sickle-cell-gene-therapy.html
https://sicklecellanemianews.com/gene-therapy/
https://www.healthline.com/health-news/stem-cell-treatment-offers-hope-for-sickle-cell-anemia-cure#6
https://www.verywellhealth.com/gene-therapy-for-sickle-cell-disease-4588187

Sickle Cell Treatments:

Gum Arabic to raise fetal hemoglobin
https://bmchematol.biomedcentral.com/articles/10.1186/s12878-015-0040-6
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5356407/
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4696138/
https://www.ncbi.nlm.nih.gov/pubmed/28331623
https://www.ncbi.nlm.nih.gov/pubmed/30956961
https://www.ncbi.nlm.nih.gov/pubmed/31316836

Here are some links to herbs for Sickle cell
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3502758/
https://mindbodynetwork.com/article/herbs-and-supplements-for-sickle-cell-anemia

Here are some other natural supplementation for Sickle cell

L-glutamine:
https://www.ncbi.nlm.nih.gov/pubmed/30021096
https://www.jwatch.org/na46989/2018/06/15/l-glutamine-sickle-cell-anemia

L-glutathione:
https://www.ncbi.nlm.nih.gov/pubmed/11920197
http://www.bloodjournal.org/content/124/21/4173?sso-checked=true
https://www.researchgate.net/publication/21047484_Selenium_and_Glutathione_Peroxidase_Levels_in_Sickle_Cell_Anemia

Resveratol:
https://www.eurekalert.org/pub_releases/2009-10/mcog-rgs102209.php
https://link.springer.com/article/10.1007/s00277-018-3392-8

Here are two articles on the new sickle cell cure (there are more articles on our facebook site):

https://www.cbs.com/shows/60_minutes/video/kaxgqzPGVQulVXxP2ilWPqMZvWeraYeq/could-gene-therapy-cure-sickle-cell-anemia-/?fbclid=IwAR1UFyyd2SyPRNAc_2Wp1mkaawXbMlU5FamWvN6de4S3P3z0GrKVr__Xb3Q


https://www.cbsnews.com/video/sickle-cell-anemia-patients-react-to-breakthrough-treatment/?fbclid=IwAR1MjdG9hFqQEmhkMrK3PwNU479fyDB2S4JCoCCUeip13Jfx7X2sNnS4zIc


NIH Clinical Trials Results via RSS
http://clinicaltrialsfeeds.org/clinical-trials/results/term=sickle+cell%20anemia

Sickle Cell Information Center – Extensive resources and information for parents, children, teachers and health care professionals
http://scinfo.org/

Management of Acute Pain in Pediatric Patients with Sickle Cell Disease (Vaso-Occlusive Episodes) -
by New England Pediatric Sickle Cell Consortium

Management of Acute Chest Syndrome in Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD and Matthew Heeney, MD

Recommended Curriculum for Transition from Pediatric to Adult Medical Care for Adolescents with Sickle Cell Disease: Suggested Topics, Methods, and Efficacy Measurements -
by WISCH Transition Affi nity Group Members: Jane Hankins (chair), Sheila M Anderson, Michael Barnett,Fernando Barreda, Wondwessen Bekele, Suzanne Bell, Jeannie Byrd, Mary Campbell, Yvonne M Carroll, Maria Champigny, Miralda Charles, Alice Cohen, Audrey R Cole, Lori Crosby, Donna Dixon, Mark Goodwin, Oba Hollie, Ashley Housten, Alana Lopez, Kelley Mansker, Michael Matthews, Owita Mays, Brandi McClain, Amanda Norton, Wanda Payton, Jerlym Porter, Michael Regier, Sandra Sledge, Amy Sobota, Marcus Stevenson, Marsha Treadwell, Lauren Whiteman, Andrea Williams, Michelle Williams

Blood Transfusion for Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney,MD

Prevention and Treatment of Stroke for Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney, MD

Evaluation and Management of Fever in Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, Elizabeth Mullen, MD, Sharon Space, MD, and Matthew Heeney, MD

Management of Priapism in Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, and Matthew Heeney, MD

Use of Hydroxyurea in Pediatric Patients with Sickle Cell Disease -
by Kathleen Ryan, RN, MPH, and Matthew Heeney, MD.

Blood Transfusion for Pediatric Patients with Sickle Cell Disease -
by KathleenRyan, RN, MPH, Anju Chawla, MD, Sharon Space, MD, and Matthew Heeney,MD.

Platelet-inhibiting drug does not significantly reduce pain crises in sickle cell disease
by Dr. Matthew M. Heeney, MD December 08, 2015

BCL11A-based gene therapy for sickle cell disease passes key preclinical test -
by Dr. David A. Williams, MD  September 06, 2016

Gene editing study reveals possible 'Achilles heel' of sickle cell disease -
by Dr. Stuart Orkin, MD - September 16, 2016

Dialing up fetal hemoglobin dials down sickle cell disease -
by Dr. Stuart Orkin, MD October 13, 2011

National Heart, Lung and Blood Institute (US Department of Health) – Overview of sickle cell disease and helpful tips to stay healthy, and links to other NHLBI sickle cell resources
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/

The BC Children’s Hospital Website
http://www.bcchildrens.ca/Services/Onc-HemBMT/blood-disorders/hemoglobinopathy.htm

Toronto Hospital for Sick Children – Pamphlets for many disorders, including sickle cell disease
www.aboutkidshealth.ca

St. Jude Children’s Research Hospital – Downloadable pamphlets for patients
http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7d8029ff89c1d110VgnVCM1000001e0215acRCRD

BC Inherited Bleeding and Red Cell Disorder Provincial Program
http://www.pbco.ca/index.php?option=com_content&task=section&id=4&Itemid=85

United Kingdom Sickle Cell Society – resources for adults and children
http://www.sicklecellsociety.org/websites/123reg/LinuxPackage22/si/ck/le/sicklecellsociety.org/public_html/

National Heart, Lung, and Blood Institute
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/treatment.html

Harvard Medical School Teaching Hospital / Beth Israel Deaconess Medical Center
Treatments for Sickle Cell Disease
http://www.bidmc.org/YourHealth/Therapeutic-Centers/Search/searchresults/searchresult.aspx?ChunkID=20163

University of Maryland Medical Center
http://umm.edu/health/medical/reports/articles/sickle-cell-disease

University of Illinois - Hospital and Health Sciences System
http://hospital.uillinois.edu/Patient_Care_Services/Sickle_Cell/Managing_Sickle_Cell.html

Medscape
http://emedicine.medscape.com/article/205926-treatment

Mayo Clinic - Treatment
http://www.mayoclinic.com/health/sickle-cell-anemia/DS00324/DSECTION=treatments-and-drugs

The New York times - Health Guide
http://www.nytimes.com/health/guides/disease/sickle-cell-anemia/


Other Sickle Cell Links:

Sickle Cell Cure Foundation
http://sicklecellcurefoundation.org/

Foundation for Sickle Cell Disease Research
http://fscdr.org/

Providence Hematology
http://www.providencehematology.com/index.html

The University of British Columbia (UBC) - Centre for Blood Research
http://cbr.ubc.ca/

The BC Children’s Hospital Website
http://www.bcchildrens.ca/Services/Onc-HemBMT/blood-disorders/hemoglobinopathy.htm

Toronto Hospital for Sick Children – Pamphlets for many disorders, including sickle cell disease
www.aboutkidshealth.ca

St. Jude Children’s Research Hospital – Downloadable pamphlets for patients
http://www.stjude.org/stjude/v/index.jsp?vgnextoid=7d8029ff89c1d110VgnVCM1000001e0215acRCRD

Sickle Cell Information Center – Extensive resources and information for parents, children, teachers and health care professionals
http://scinfo.org/

National Heart, Lung and Blood Institute (US Department of Health) – Overview of sickle cell disease and helpful tips to stay healthy, and links to other NHLBI sickle cell resources
http://www.nhlbi.nih.gov/health/health-topics/topics/sca/

United Kingdom Sickle Cell Society – resources for adults and children
http://www.sicklecellsociety.org/websites/123reg/LinuxPackage22/si/ck/le/sicklecellsociety.org/public_html/

Sickle Cell Kids – an interactive website for kids with quizzes, videos and games
http://www.sicklecellkids.org/sicklecell_temp.html

American Society of Hematology
http://www.hematology.org/publications/50-years-in-hematology/4325.aspx

Dr. Andrew Weil, M.D.
http://search.drweil.com/search?site=DrWeil&client=DrWeil_search&proxystylesheet=DrWeil_search&output=xml_no_dtd&q=sickle+cell+disease&btn_search=SEARCH

WebMD
http://www.webmd.com/a-to-z-guides/sickle-cell-disease-nord

Health Link BC
http://www.healthlinkbc.ca/kb/content/nord/nord25.html

How Sickle Cell Protects Against Malaria:
Protection from Severe Malaria Explained
Naturally-Occurring Protection Against Severe Malaria Demonstrated