About Us:
Members of the Board:
Co-Founder, President / Executive Director, Children and Family Patient Program Coordinator, Fundraising
Adobie McAllister's daughter has Sickle Cell Disease and is an advocate of integrative and alternative methods of treating Sickle Cell Disease and is a representative for the Strategic Advisory Group for the BC Inherited Bleeding and Red Cell Disorders Provincial Program. Adobie lives and works in Vancouver, BC and is working on a Sickle Cell binder for patients with Sickle Cell. Presently she is working on an education handbook / binder for Sickle Cell patients.
Adobie McAllister's daughter has Sickle Cell Disease and is an advocate of integrative and alternative methods of treating Sickle Cell Disease and is a representative for the Strategic Advisory Group for the BC Inherited Bleeding and Red Cell Disorders Provincial Program. Adobie lives and works in Vancouver, BC and is working on a Sickle Cell binder for patients with Sickle Cell. Presently she is working on an education handbook / binder for Sickle Cell patients.
Co-Founder, Chair of Board of Directors, Web Development, Grant Writing, Former President / Executive Director
Storma Sire was diagnosed with Sickle Cell Disease at age 7. She is an advocate of blending medical and integrative / holistic / alternative methods to treating Sickle Cell Disease and is a representative for the Strategic Advisory Group for the BC Inherited Bleeding and Red Cell Disorders Provincial Program. Storma is also a creative art and writing instructor, is formerly a suicide prevention distress line trauma counselor for the Vancouver Crisis Centre, is a visual artist and a published children's author / illustrator and poet (see Lessons in Magic and The Great Black North; Contemporary African Canadian Poetry). Storma lives and works in Vancouver, BC and is presently working on a book for treating Sickle Cell holistically and medically; sharing her experiences managing the disorder.
Interview: CBC Interview
Storma Sire was diagnosed with Sickle Cell Disease at age 7. She is an advocate of blending medical and integrative / holistic / alternative methods to treating Sickle Cell Disease and is a representative for the Strategic Advisory Group for the BC Inherited Bleeding and Red Cell Disorders Provincial Program. Storma is also a creative art and writing instructor, is formerly a suicide prevention distress line trauma counselor for the Vancouver Crisis Centre, is a visual artist and a published children's author / illustrator and poet (see Lessons in Magic and The Great Black North; Contemporary African Canadian Poetry). Storma lives and works in Vancouver, BC and is presently working on a book for treating Sickle Cell holistically and medically; sharing her experiences managing the disorder.
Interview: CBC Interview
Co-Founder, Adult Patient Program Coordinator, and Director
Beverly Ndukwu was diagnosed with Sickle Cell Disease at age 2. Her beloved younger sister Andrea passed away of Sickle Cell a few years ago. Beverly organizes adult support groups for those with Sickle Cell and has worked with the planning committee for the Sickle Cell Disease Association of Canada. Beverly is also co-founder of the Sickle Cell Association of Winnipeg. She's also an actress and model and won Peoples Choice for Canada's Miss Black Beauty pageant to raise money for Sickle Cell Disease. Beverly lives and works between Winnipeg, Manitoba and Vancouver, BC and presently works as an x-ray technologist.
Beverly Ndukwu was diagnosed with Sickle Cell Disease at age 2. Her beloved younger sister Andrea passed away of Sickle Cell a few years ago. Beverly organizes adult support groups for those with Sickle Cell and has worked with the planning committee for the Sickle Cell Disease Association of Canada. Beverly is also co-founder of the Sickle Cell Association of Winnipeg. She's also an actress and model and won Peoples Choice for Canada's Miss Black Beauty pageant to raise money for Sickle Cell Disease. Beverly lives and works between Winnipeg, Manitoba and Vancouver, BC and presently works as an x-ray technologist.
Director and Secretary
Thelma Mcdonald's daughter has Sickle Cell Disease, has taken workshops in Care Giving with the Family Caregivers' Network Society. She is a passionate supporter of the Sickle Cell cause. Thelma is co-writing a Handbook for Sickle Cell with Storma Sire and will be featured in a documentary and DVD series about Sickle Cell. She lives and works in Vancouver, BC.
Thelma Mcdonald's daughter has Sickle Cell Disease, has taken workshops in Care Giving with the Family Caregivers' Network Society. She is a passionate supporter of the Sickle Cell cause. Thelma is co-writing a Handbook for Sickle Cell with Storma Sire and will be featured in a documentary and DVD series about Sickle Cell. She lives and works in Vancouver, BC.
Fundraising
Erin Northcott owns and runs Not-Just-Nannies, a Vancouver based nanny placement agency and is an advocate of integrative / holistic health care for children and families. Her younger brother, Daniel Northcott, passed away of Leukemia in 2009. He was in the process of making a documentary of his battle with leukemia called Be Brave, but died before he could finish it. Erin Northcott decided to raise the money to make the film on her own through social media. She has since completed the film and has raised nearly half a million dollars. Erin is a passionate supporter of the Sickle Cell cause. While looking after her ailing brother she was also looking after her best friend Storma Sire, president of the Sickle Cell Association of BC. Erin lives and works between Vancouver, Los Angeles, and India.
Erin Northcott owns and runs Not-Just-Nannies, a Vancouver based nanny placement agency and is an advocate of integrative / holistic health care for children and families. Her younger brother, Daniel Northcott, passed away of Leukemia in 2009. He was in the process of making a documentary of his battle with leukemia called Be Brave, but died before he could finish it. Erin Northcott decided to raise the money to make the film on her own through social media. She has since completed the film and has raised nearly half a million dollars. Erin is a passionate supporter of the Sickle Cell cause. While looking after her ailing brother she was also looking after her best friend Storma Sire, president of the Sickle Cell Association of BC. Erin lives and works between Vancouver, Los Angeles, and India.
