Happy World Sickle Cell Celebration Week! CEO/ President Mary Akua Ampomah launches the GASCDO 2022 WSCD activities. In honor of the World Sickle Cell week, GASCDO has series of activities for you to get involved! Join GASCDO on this journey.Thank you for your support. You help us grow everyday. Happy World Sickle Cell Celebration Week!
GASCDO is celebrating World Sickle Cell Day 2022 The Global Alliance of Sickle Cell Disease Organizations, GASCDO is celebrating World Sickle Cell Day 2021 to raise awareness of healthy living habits and reduce the stigma around SCD. We are embarking on a daily healthy living tips campaign for world sickle cell Day. These videos will be in English, Hindi, French, Spanish, and Arabic! The video you make will be played on all GASCDO's social media platforms. If you are a patient, caregiver, advocate, or health care professional and you want to join this campaign, send us a short video (3 - 5 minutes - www.facebook.com/globalscdorgs/videos/552924246417571tes duration) sharing one piece of healthy living tip/information to educate the community about SCD. This campaign is done by GASCDO, Members of GASCDO, those living with SCD, caregivers, advocates, and health care professions for the benefit of our entire community. Let’s help reduce the discrimination and stigmatization in SCD.
Mental Health and Sickle Cell: Mental health has been a challenge for many, especially those living with Sickle Cell Disease. We are pleased to have certified health coach Aisha Saintiche of Me To Moi with us to discuss taking control of our mental health March 2021
Hydroxyurea and the new innovative therapies for Sickle Cell Disease : This GASCDO webinar features both Prof. Kwaku Ohene-Frempong and Prof. Salam Alkindi speaking about Hydroxyurea and future therapies for those living with Sickle Cell Disease. The patient perspective will be provided by Oluyemi Moses and Alvin Merchant. Hosted by Biba Tinga March 27, 2021
SCDAC/AAFC: Searching for Health Equity On October 3rd 2020, we had an education session about the Search for Health Equity with Dr. Zaidi and Patient advocate Alvin Merchant. An important discussion for our community. Oct 3, 2020
Living with Sickle Cell: Join Nicole Waldron as she speaks with our president Lisa Bailey, our V.P. Serena Thompson and our Director of Patient Support Ulysse Guerrier about living with Sickle Cell Disease. Sept 28, 2020
COVID-19 & Sickle Cell Disease: PRECAUTIONS With things slowly getting to the new normal and many of us looking at ways to get out and enjoy the weather, we wanted to remind everyone of a few things to be aware of as it relates to Sickle Cell Disease. Our Director of Medical Support, Dr. Joel Moody speaks on some of the precautions we should all be aware of when dealing with COVID-19 and Sickle Cell Disease. July 7, 2020
When to transfuse: Blood transfusions are another one of those topics within the Sickle Cell community that have advocates and naysayers on both sides. This short 4 minute plus video and article do a great job of breaking down the pros and cons of regular blood transfusions. We would love to hear your if blood transfusions have worked for you or why you don't have regular transfusions as part of your care protocol. Sept 12, 2019