Sickle Cell Association of BC Lecture Library: 

2024 Lectures:

Hydration
Storma Mcdonald

Sickle Cell and Nutrition
Storma Mcdonald

Sickle Cell and Social Isolation
Storma Mcdoanld

Sickle Cell and Discrimination
Storma Mcdonald

2022 Lectures:

Warrior Dads: A Life Conversation; A conversation with Sickle Cell Warrior Dads
Biba Tinga
Ulysses Guerrier
Kavan Layne
Modorated by: Biba Tinga
June 18m 2022

Warrior Moms: A Life Conversation; A conversation with Sickle Cell Warrior Moms
Kuda Bempong
LeAnne Laylor
Lorraine Sandy-Williams
Biba Tinga
Moderated by: Alvin M
May 14, 2022


Global Alliance Sickle Cell Disease Organizations Conference (GASCDO) Lectures May 20 - 22, 2022:

Happy World Sickle Cell Celebration Week!
CEO/ President Mary Akua Ampomah launches the GASCDO 2022 WSCD activities. In honor of the World Sickle Cell week, GASCDO has series of activities for you to get involved! Join GASCDO on this journey.Thank you for your support. You help us grow everyday. Happy World Sickle Cell Celebration Week!

GASCDO is celebrating World Sickle Cell Day 2022
The Global Alliance of Sickle Cell Disease Organizations, GASCDO is celebrating World Sickle Cell Day 2021 to raise awareness of healthy living habits and reduce the stigma around SCD.
We are embarking on a daily healthy living tips campaign for world sickle cell Day.
These videos will be in English, Hindi, French, Spanish, and Arabic!
The video you make will be played on all GASCDO's social media platforms.
If you are a patient, caregiver, advocate, or health care professional and you want to join this campaign, send us a short video (3 - 5 minutes -  www.facebook.com/globalscdorgs/videos/552924246417571tes duration) sharing one piece of healthy living tip/information to educate the community about SCD. This campaign is done by GASCDO, Members of GASCDO, those living with SCD, caregivers, advocates, and health care professions for the benefit of our entire community.
Let’s help reduce the discrimination and stigmatization in SCD.

ER Care for Sickle Cell Disease - GASCDO 2022 conference
Rachel Kesse-Adu
Mariane de Montalembert

Transfusion and Iron Overload and Sickle Cell Disease - GASCDO 2022 conference
Adlette Inati
Erin Goodhue
Ali Taher

Sickle Cell Disease Complications Part 1 - GASCDO 2022 conference
Salam Alkindi
Dr. Fenella Kirkham
Dr. Santosh Sarraf
Dr. Ammar Saadoon, MD

Sickle Cell Disease Complications – Part 2 - GASCDO 2022 conference
Moderated by: Dr. Hatoon Ezzat
Dr. Arthur L. Burnett
Dr. Caterina Minniti
Dr. Oyebimpe Adesina

Hydration and Physical Activity and Sickle Cell - GASCDO 2022 conference
Dr. Mary Akua Ampomah
Dr. Prantar Chakraborty
Dr. Yves Pastore, MD

Social Life & Relationships and Sickle Cell Disease - GASCDO 2022 conference
Biba Tinga
Shelley Crosby
Seshie Eyram Kudjoe
Henry Clafin

Sickle Cell Trait - GASCDO 2022 conference
Gautam Dongre
MB Agarwal

Hydroxyurea: Global perspective from Tanzania, Trinidad, India and Canada - GASCDO 2022 conference
Health care providers Input from Dr Clark Brown, USA
Thank you to our Sponsors for supporting this session

GASCDO Conference: Artistic Performance and Welcome - GASCDO 2022 conference
Introduction - Day 2
Saturday May 21, 2022
Floria
Elvie Ingori

Social Stigma & Psychosocial Support for Sickle Cell - GASCDO 2022 conference
Elle Cole
Alvin Merchant
Rae Blaylark
Adlette Inati
Khaled Warwar
Flaminia Macchia

Mental Health and Sickle Cell Disease - GASCDO 2022 conference
Storma McDonald
Marjorie Dejoie-Brewer
Henry Claflin

Reproductive Health Issues and Planning / Pregnancy Management - for Sickle Cell Disease
Pregnancy Management - for Sickle Cell Patients - GASCDO 2022 conference
Moderator: Ufuoma Muwhen, Advocate
Teonna Woolford, Patient
Dr. Kim Smith-Whitley, MD
Q&A
Pregnancy Management
Dr. Eugene Oteng-Ntim, MD, Q&A

Hematopoieitic Stem Cell Transplantation and Cell and Genetic Cell Approaches in Sickle Cell Disease (Educational session sponsored by Vertex Pharmaceuticals) - GASCDO 2022 conference
Moderated by:
Dr. Salam Al Kindi, MD
Miguel Abboud, BMT Expert,
Bill Hobbs, VP, Clinical Development, Vertex

“The Need for Blood” Project and Hypoxic storage improves oxygen delivery and inhibits adhesion of RBCs to human endothelial cells: implication for transfusion in patients with SCD - GASCDO 2022 conference
Moderated by: 
Ulysse Guerrier, Advocate
Biba Tinga, President SCDAC,
Jennie Haw, Researcher, CBS
HEMANEXT Samuel Coker, PhD, USA

Employment, Education & Financial Considerations - for those with Sickle Cell Disease - GASCDO 2022 conference
Moderated by:
Ade Sawyer, GASCDO Board
Richard Langhorne, Parent/Social Worker/Psychotherapist
Ruchita Patel, Patient
Judy Grandison, Caregiver
Q&A

Cure In Sickle Cell Disease – Bone Marrow Transplant - GASCDO 2022 conference
Sickle Cell Reproductive Health Education Directive
Moderated by:
Biba Tinga, President, SCDAC
Discussion and Q&A
Teonna Woolford, Patient Advocate, Sickle Cell Reproductive Health Education Directive
Priscille Sanon, Patient
Ufuoama Muwhen, Advocate

Conference - Patient Testimonial / Closing Ceremony - GASCDO 2022 conference
Augustina Bempong
Issa Ali



2021 Lectures:

How to Hydrate Properly for Sickle Cell Disease
Herbologist Storma Mcdonald talks about innovative ways to get hydrated and stay hydrated longer
June 25, 2021

Sickle Cell & Success - Living Your Best Life
Join us as we speak with 5 Warriors living their best life!
June 19, 2021

Warrior Dads: A Father's Day Discussion of fathers dealing with Sickle Cell
June 20, 2021

Warrior Moms: A Mother's Day Discussion of mothers dealing with Sickle Cell
May 8, 2021

SCAO: Financial Literacy and Estate Planning
An informational webinar about finances in this time of COVID
April 17, 2021

Mental Health and Sickle Cell:
Mental health has been a challenge for many, especially those living with Sickle Cell Disease.
We are pleased to have certified health coach Aisha Saintiche of Me To Moi with us to discuss taking control of our mental health
March 2021

Hydroxyurea and the new innovative therapies for Sickle Cell Disease :
This GASCDO webinar features both Prof. Kwaku Ohene-Frempong and Prof. Salam Alkindi speaking about Hydroxyurea and future therapies for those living with Sickle Cell Disease. The patient perspective will be provided by Oluyemi Moses and Alvin Merchant. Hosted by Biba Tinga
March 27, 2021

COVID-19, the vaccines and how it may impact those living with Sickle Cell Disease
Join Dr. Joel Moody as he speaks with Dr's Tim O'Shea, Dr. Madeleine Verhovsek and Jennifer Bryan about Feb 20, 2021

Our Sickle Cell Life (Channel)
A youtube channel dedicated to sickle cell related topics.


2020 Lectures:

A candid discussion about cannabis and it's possible uses in the treatment of Sickle Cell Disease
Oct 24, 2020

Designing Your Personal Patient Journey During the Pandemic and Beyond
With Dr. Marjorie Dejoie-Brewer - Natural ways to take care of Sickle Cell.
Oct 3, 2020

SCDAC/AAFC: Searching for Health Equity
On October 3rd 2020, we had an education session about the Search for Health Equity with Dr. Zaidi and Patient advocate Alvin Merchant. An important discussion for our community.
Oct 3, 2020

Living with Sickle Cell:
Join Nicole Waldron as she speaks with our president Lisa Bailey, our V.P. Serena Thompson and our Director of Patient Support Ulysse Guerrier about living with Sickle Cell Disease.
Sept 28, 2020

Sickle Cell, Cover-19 & Cold/Flu Season: How to protect ourselves - By Dr. Ewurabena Simpson of McGill University, Storma McDonald President of the SCBC and Biba Tinga President of the SCDAC -
Sept 26, 2020

COVID-19 & Sickle Cell Disease: PRECAUTIONS
With things slowly getting to the new normal and many of us looking at ways to get out and enjoy the weather, we wanted to remind everyone of a few things to be aware of as it relates to Sickle Cell Disease.
Our Director of Medical Support, Dr. Joel Moody speaks on some of the precautions we should all be aware of when dealing with COVID-19 and Sickle Cell Disease.
July 7, 2020

Voices: A National Conversation without Boarders by Biba Tinga President of the SCDAC
June 19, 2020

The Hopes and Realities of Bone Marrow Transplantation as a Curative Therapy for Sickle Cell Disease - by Dr. Greg Guilcher MD, FRCP, FAAP of the University of Calgary -
June 17, 2020


Older Lectures:

Sickle Cell Information Session on Alternative Therapies by Storma Mcdonald, Tamika Mosley, Maria Vlasapoulos, Barb Boyd-
Sept 2019

When to transfuse:
Blood transfusions are another one of those topics within the Sickle Cell community that have advocates and naysayers on both sides. This short 4 minute plus video and article do a great job of breaking down the pros and cons of regular blood transfusions. We would love to hear your if blood transfusions have worked for you or why you don't have regular transfusions as part of your care protocol.
Sept 12, 2019

Pain Management and Sickle Cell Lecture 
by Storma Mcdonald-
Sept 2018

Are We Doing Enough For Sickle Cell -
Lecture by Dr. Hatoon Ezzat (hematologist) -
Nov 2018

A Patients Perspective on Comprehensive Care
by Storma Mcdonald -
Nov 2018